Today I want to share something very personal. Something that was, in many ways, harder for me to admit to myself and to others than being gay. My disability. It is frustrating how easily people dismiss disability when they see a young person. I cannot count how many times I have heard “but you are so young” as if youth automatically means health or if illness only becomes real when visible. I wear a sunflower lanyard, which represents disabilities, that are not obvious from the outside. In my case it means AuDHD, cPTSD and anxiety. It also means that standing or walking for more than 15 minutes can become painful, and also means bowel problems. But here is the painful part. When I do not wear the lanyard, people treat me as if I cannot possibly be disabled. I am just a young guy, who looks “normal”. So people cross boundaries, question or judge me. For several times I have been pushed out of disabled toilets just because some people decided that I was not disabled enough. And when I do wear the lanyard, often people treat me as if I am less intelligent or less adult. Withouth the lanyard, I am not disabled enough. With the lanyard, I am too disabled. And somewhere between those two projections, the real me disappears. This is something I have experienced not only in general, but also inside communities that should know better. Even within gay spaces, once people see the lanyard, the distance appears. The conversation changes. And that hurts a lot. Apart of being gay, or disabled, I’m also a refugee. Often, each community understands or accepts only a part of me rather than the whole, judging the other sides. I do not want to hide my full identity inside a community that knows what it means to hide parts of yourself just to survive or fit better. So I end up belonging everywhere and nowhere at the same time. I just wish people understood that invisible does not mean imaginary and that the world is more than just black and white.
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just.donnie
You area a part of so many minority groups and this should not make connecting with others as difficult as it does for many people. Wishing you a happy Disability a Pride month just after LGBTQ pride month. I hope you enjoy two months in a row of celebrating these parts of you
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just.donnie
@austbaumer I completely understand. I have autism and deal with sensory overload, especially with lights and loud noises
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theartfulroger
At least now, here, you’ve shed light on the issue which presumably affects a lot of others too, so by sharing you’ve educated the Collective community. Let’s hope we can all take a lesson here and by example educate others to see you for you alone. 👏
hidden
Totally understand. I still struggle so much with claiming the D label. Invisible disabilities are a special kind difficult. Too much/not enough is always the hassle. It’s a complicated journey of self compassion and learning how to accept, advocate, and communicate my needs. All of it takes so many « buttons » (energy).
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subpartf
Commenting to say I empathize, especially with the “too young” ergo “not disabled enough” occurrences. I’m not sure I consider myself disabled, but have a disruptive heart condition that took years for doctors/cardiologists to diagnose because I’m young, look healthy, and not within any of the risk groups. Extremely frustrating.
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